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Kelly Mathias

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Kelly Mathias

Post by Guest on Sat May 30, 2015 5:34 pm

This message was sent from:
http://www.butterflywishesnetwork.co.uk/family-application
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Name of sender: Kelly Mathias 07958655347

Address:
28 Station Road

Marston Moretaine
Bedfordshire
MK43 0PS

Email: Kellyhinton15@aol.com

------------------------- About the Family -------------------------

My daughter Sophie has was born with Down Syndrome but was fairly healthy. However, at 5 months old she developed a catastrophic form of epilepsy called Weat Syndrome, this lead to her health rapidly deteriorating. At 18 months old she was rushed down by ambulance to intensive care in Great Ormond Street Hospital where she spent 6 months. During her time there she was critically ill and at one point she suffered a respiratory arrest and had to be resuscitated. Her long period of illness has left her with very weak lungs and as a result she has Chronic Lung Disease and has to be on oxygen overnight. Sophie also cannot eat due to risk to her lungs so she is purely tube fed. Sophie is 4 and a half now but developmentally aged 0-6 months. She cannot sit unaided, stand or walk. She is registered blind due to the damage the seizures have caused to her brain. We don't know what the future holds as Sophie's lungs are very weak and even a small cold can lead to a prolonged hospital stay. We are currently supported by Keech Hospice who provide us with advice and respite for Sophie when she is going through a hard time.


------------------------- In support of the application -------------------------

We have 3 children and due to Sophie's lack of mobility it is difficult for us to get any pictures of Sophie with her brothers or us as a family. We would love to create some memories of us together that we can keep and cherish no matter what the future holds.


------------------------- Sponsor Details -------------------------

Donna Hilton, Community Nurse, Keech Hospice Care, 07766 133562 or 01582 497871

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Re: Kelly Mathias

Post by Butterfly Admin Liz on Fri Jun 12, 2015 8:36 pm

Sent consent form out last week waiting to hear.

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