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FA202 - Gia Fitzimons

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FA202 - Gia Fitzimons

Post by Butterfly Admin Liz on Fri Jan 16, 2015 12:02 am

Name of sender: Gia Fitzsimons 07889831883

Address:
8 Third Avenue
Dovercourt
Harwich
Essex
CO12 3SE

Email: giafitz1@live.co.uk

------------------------- About the Family -------------------------

My daughter, Nelle Francis, is three and a half months old and has recently been diagnosed with a rare genetic disorder called Spinal Muscular Atrophy type one and given two months to live.  SMA is a condition were Nelle's muscles deteriate over time and eventually stop working, as a result of this Nelle shall soon be totally reliant on an oxygen tank and mask to breathe and can't move her body very much, she is also fed via a nasal tube.


------------------------- In support of the application -------------------------

I would really love to be able to have some professional photographs of our beautiful daughter as we have never been able to get any due to the price they cost so all our pictures of Nelle are just ones we have taken on our phones.  Her father and I are both of work at the moment while we care for Nelle and have a car so can travel at the moment, however once Nelle becomes oxygen reliant she will no longer be able to go out.


------------------------- Sponsor Details -------------------------

Mr Neil Gilesspe
07769584750
Head of key stage five Science (teacher)

Butterfly Admin Liz
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Re: FA202 - Gia Fitzimons

Post by Butterfly Admin Liz on Fri Jan 16, 2015 12:03 am

To: giafitz1@live.co.uk
> Subject: Re: Family Application - Gia Fitzsimons 07889831883
>
> Hi Gia,
>
> Can we please ask for you to fill in this form please.
>
> http://www.butterflywishesnetwork.co.uk/familyinformation
>
> With Kind Regards
>
> Team Butterfly Admin
>
>
> On 2014-12-24 10:17, 07889831883 wrote:
> > This message was sent from:
> > http://www.butterflywishesnetwork.co.uk/family-application
> > ------------------------------------------------------------
> > Name of sender: Gia Fitzsimons 07889831883
> >
> > Address:
> > 8 Third Avenue
> > Dovercourt
> > Harwich
> > Essex
> > CO12 3SE
> >
> > Email: giafitz1@live.co.uk
> >
> > ------------------------- About the Family -------------------------
> >
> > My daughter, Nelle Francis, is three and a half months old and has
> > recently been diagnosed with a rare genetic disorder called Spinal
> > Muscular Atrophy type one and given two months to live. SMA is a
> > condition were Nelle's muscles deteriate over time and eventually stop
> > working, as a result of this Nelle shall soon be totally reliant on an
> > oxygen tank and mask to breathe and can't move her body very much, she
> > is also fed via a nasal tube.
> >
> >
> > ------------------------- In support of the application
> > -------------------------
> >
> > I would really love to be able to have some professional photographs
> > of our beautiful daughter as we have never been able to get any due to
> > the price they cost so all our pictures of Nelle are just ones we have
> > taken on our phones. Her father and I are both of work at the moment
> > while we care for Nelle and have a car so can travel at the moment,
> > however once Nelle becomes oxygen reliant she will no longer be able
> > to go out.
> >

Butterfly Admin Liz
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Re: FA202 - Gia Fitzimons

Post by Butterfly Admin Liz on Fri Jan 16, 2015 12:04 am

Jason Sadler was covering shoot first week in January, sadly Nelle took a turn for the worst and passed before shoot

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Re: FA202 - Gia Fitzimons

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