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FA093 - Lynsey - KATIA MUSCARA

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FA093 - Lynsey - KATIA MUSCARA

Post by Butterfly Admin Samira on Mon Sep 30, 2013 8:33 pm

Name of sender: Lynsey 07732430020

Address:
11
Hanno Close
Wallington
Surrey
SM6 9BZ

Email: lynseyfuorvito@gmail.com

------------------------- About the Family -------------------------

Luca - 5 years old.
Spinal Muscular Atrophy - Type 1
SMA is a genetic neuromuscular condition that results in loss of use of all muscles.  Luca is not able to move, sit, swallow or even breathe by himself.  He is fed by a tube, has to have chest physio and suction throughout the day to help his chest, and is 24/7 on a bipap ventilator as he is unable to breathe unassisted.

Lana - 11 months old
SMA - Type 1
Lana sadly was born with the same condition as her brother.  She is also fed by a tube and receives suction and sometimes oxygen to help her breathe.  Because she is still young she currently has a little movement in her arms, but is unable to sit or hold her head.

SMA Type 1 is a terminal condition, with most children dying between 0-10 years old.


------------------------- In support of the application -------------------------

We would love some professional photographs of the children/our little family.  Due to to the amount of equipment we have to maintain the children's bodies, and the fact that they both have to lie down we would not be able to have a shoot in a photographers studio - but would need it in our own home.


------------------------- Sponsor Details -------------------------

Alison Ryley
Community Children's Nurse
Queen Mary's Hospital for Children
0208 296 3075 - office number (Can also speak to Dora)
07975 232 062

Butterfly Admin Samira

Posts : 1107
Join date : 2013-04-11
Location : Bournemouth

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Re: FA093 - Lynsey - KATIA MUSCARA

Post by Butterfly Admin Samira on Mon Sep 30, 2013 8:35 pm

Yes

Butterfly Admin Samira

Posts : 1107
Join date : 2013-04-11
Location : Bournemouth

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Re: FA093 - Lynsey - KATIA MUSCARA

Post by Guest on Mon Sep 30, 2013 8:38 pm

Yes

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Re: FA093 - Lynsey - KATIA MUSCARA

Post by Guest on Tue Oct 01, 2013 2:07 am

yes

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Re: FA093 - Lynsey - KATIA MUSCARA

Post by Guest on Tue Oct 01, 2013 2:07 am

Yes x

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Re: FA093 - Lynsey - KATIA MUSCARA

Post by Guest on Tue Oct 01, 2013 2:16 am

yes x

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Re: FA093 - Lynsey - KATIA MUSCARA

Post by Guest on Tue Oct 01, 2013 2:40 am

Yes

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Re: FA093 - Lynsey - KATIA MUSCARA

Post by Guest on Tue Oct 01, 2013 7:31 am

Approved and moved to Ali's folder

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Re: FA093 - Lynsey - KATIA MUSCARA

Post by Guest on Tue Oct 01, 2013 7:47 am

Katia Muscara agreed to do shoot.

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Re: FA093 - Lynsey - KATIA MUSCARA

Post by Guest on Sat Oct 19, 2013 2:54 am

Chased Katia to see what's happening.

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Re: FA093 - Lynsey - KATIA MUSCARA

Post by Guest on Fri Nov 01, 2013 12:11 am

We made contact, but she hasn't replied to my last email. I am going to contact her tomorrow.

Ok great
LEt me know how you get on
11 minutes ago

Hi Ali, I've just got a message from Lynsey saying that very sadly Luca died on the 18th Oct. They had the funeral yesterday! So so sad!
She will be in contact for a photo session for their daughter Lana as soon as possible in their circumstances.

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Re: FA093 - Lynsey - KATIA MUSCARA

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